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 Guest
Dear sir
I am looking the succeesful treatment on DMD.Because My Nepheu is Divanshu Gopal Tajne(8 yrs) sufuring by this desies.last year we had check with Doctors in Nagpur-India at that time his CPK value was 21000 and next time when checked it was 18000 CPK and they said at present no treatment on this desies so please assist me to get right solution on this.
Thank you
Pradeep Nikhade
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Replied on Saturday, February 9, 2008 12:00 AM
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Guest
we are two brothers suffering from Bakers muscular dystrophy.is there any treatment yet possible.what abot NONI india?
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Replied on Wednesday, May 20, 2009 12:00 AM
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Guest
Dear Sir, I am from Nagpur, my son 11 years old is suffering from DMD, from last 3 years he is bedridden [on wheelchair]. I have shown to Dr. I. C. Verma, Genitician, New Delhi. He informed till today there is no treatment on this. Can we meet anytime, V both can take out some solution.
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Replied on Thursday, August 27, 2009 12:00 AM
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Guest
have good friends
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Replied on Wednesday, September 2, 2009 12:00 AM
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Guest
i my self have son aged 17years.suffering from dmd fr past10years, u see u r child slowly going out of u r hands try to give him moarl suppourt, any further help regarding motorised wheel chair,or health wise advice
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Replied on Friday, March 5, 2010 12:00 AM
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Guest
You can go throw with the treatment called 'Stem cell Therapy'.
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Replied on Friday, March 26, 2010 12:00 AM
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Dear Sir,
my son have age 10 yrs is also suffering from DMD since feb 2008 i give him food suppliments he feels well and good can u give me ur valuable suggestion regarding further health wise advice and motorised wheel chair
my e-mail [email protected] |
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Replied on Sunday, November 28, 2010 7:57 AM
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Dear guest, What you said is right, 'u see ur child slowly going out of ur hands'. We had undergone this trauma and lost our only child for this disease. But still we work to save this community. Muscular Dystrophy Foundation India [mdfindia] is an organisation of patients and parents of MD. Get information regarding motorised wheel chair, care and management, etc.
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Replied on Tuesday, March 27, 2012 4:37 AM
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Keep your child away from any infection like cold, fever, etc., minute infection may lead to pnemonia or lung infection, which will make the child's condition still worse. My prayers for your son and your family to give the courage to fight this disease. Take 2D Echo to check the EF. This is being done in scan centre by a cardiologist. Try to keep him in a fresh air atmosphere.
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Replied on Friday, March 30, 2012 3:54 AM
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lyn ferraer (Guest)
i have two sons with dmd, i am looking for cure please inform me if ever you will have acure for the disease. thank you
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Replied on Tuesday, December 23, 2008 12:00 AM
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sharon gawigawen (Guest)
i have a patient with muscular dystrophy. where can genetic testing or muscle biopsy for muscular dystrophy be done?
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Replied on Saturday, December 27, 2008 12:00 AM
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Dear Sharon, For muscle biopsy, the patient can be directed to NIMHANS Bangalore. Ask them to carry their ration card, income certificate if they come under BPL. They have stay there atleast for a day. Let them attend the OP on Monday or Wednesday. Stay one night for muscle biopsy and return. It will take a month for getting the result. [email protected] / www.mdfindia.org |
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Replied on Friday, March 30, 2012 3:44 AM
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Dear Sir, Our relatives children got affected by Muscular Dystrophy at the age of 12. At age 12 both brother and sister got effected by this disease. They have gone to all over south india for the treatment and they didn't find anything. In this condition they are doing the studies by the help of their parents. Please tell us when will we get a solution for Muscular Dystrophy and whom should we contact for the treatment. We will be eagerly waiting for the update. Thanking You.. Nuthan.
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Replied on Wednesday, October 7, 2009 12:00 AM
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dear friend, my youngest son is suffering by DMD since Dec2007 Dr said there is no treatment but i give him food suppliment regularly so he feel good and energetic. he can doing all activity except climbing &wakeup thanking you pkgupta
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Replied on Sunday, October 25, 2009 12:00 AM
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Guest
My son 11 years old is also suffering from DMD. Please let me know what kind of food suppliment you are giving to your child for me to try out with my son. I value your reply so much.
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Replied on Wednesday, November 4, 2009 12:00 AM
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dear friends,
as i know there is no significant treatment of DMD my son having age 10yr is also suffring but i give him food suppliments of nutrilite brands as a result of this he behave like 100%energetic and live with full of joy and always try to fight the defficulties which comes in front of him as i feel food suppliment is only option for our loving to keep energetic and give support fight angaist destrophy
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Replied on Sunday, November 28, 2010 7:45 AM
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Dear sir, I am looking the treatment on DMD Because My two nephew are Harshit Aneja[8 Years] and Udit Aneja(3 Years) sufuring by this desies.
Please tell me about what kind of food you are giving to your child. Thanks
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Replied on Saturday, November 28, 2009 12:00 AM
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my 8 years old son suffering from dmd.what kind of food you give to your child please tell me. thank you.
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Replied on Monday, March 15, 2010 12:00 AM
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Guest
My nephew 11 years old is also suffering from DMD. Please let me know what kind of food suppliment you are giving to your child for me to try out with my nephew. I value your reply so much.
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Replied on Monday, July 12, 2010 12:00 AM
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