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Genetic and Metabolic :
Muscular Dystrophy / Duchenne Muscular Dystrophy

Muscular dystrophy (MD) refers to a group of hereditary disorders which causes muscles to weaken and waste away. There is no cure for MC, but drug treatment for symptoms, therapy, and assistive technology can make a huge difference for a person with the condition.

Learn more about muscular dystrophy from doctors and other people and families dealing with the condition in this online support group for MD.

 

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Muscular Dystrophy / Duchenne Muscular Dystrophy

Muscular dystrophy is the collective term used to represent genetic disorders characterized by progressive weakening of muscles and wasting of muscle tissue. The term dys refers to abnormal and trophy represents growth. The term muscular dystrophy refers to inadequate/defective growth...Read More

Posted on : Tuesday, February 23, 2010 12:00 AM
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my son who is 6 years old is suffering from DMD since last year but doctors says there is no cure.he can walk slowly but unable to run. he can climb the up stair with difficulty.if any there is any treatment plz let me know a mother beg you for that.
Replied on Sunday, August 1, 2010 12:00 AM
dear,
there is no cure for it.ur son age is below 8yrs so i think steam cell therapy woul be helpful to him as it is possibly working for boys below 8yrs.u may contact me for further info at at:popatswapnil@gmail.com.
i would like to give u advise that give him vit.c tablet one a day[ after consulting doctor about its quantity],make ur son to sleep in inverted position so that muscles near his thighs do not get contracted while growing.
Replied on Wednesday, October 6, 2010 7:22 AM
Hi, Vinod Bhole is here from Nashik (Maharashtra), I have son aging 12 years, he is suffering from DMD since 3 years, he can't climb upstairs, he can't stand up instantly & properly, but he can walk some distance. His all muscles is very thin. In his studies he is very good as he earned 87% in his final exams.As per alopathy Doctors there is no any tretment, and he will be no more after some years. No any treatment is going on for him. But we are giving him Food suppliment & some tablets.
Replied on Monday, August 9, 2010 12:00 AM

Guest
i'm neha and my brother also suffering from dmd,now his treating by ayurvedic medicines .now he is right and his health improving.
plzzzzzzzzzz contact me at nehadb21@gmail.com
Replied on Monday, August 16, 2010 12:00 AM

Guest
hi neha i m pankaj my son is 5 years old and suffering form dmd but currently he walks and normal what can i do.....
Replied on Monday, August 23, 2010 12:00 AM

sureshvm
(Guest)
pls. go physiotherapy and ayurveda massage. No treatment for this. Don't go to stem cell treatment. cheeting. Keep him active and give good protine food. Thanks

Suresh. bangalore
Replied on Tuesday, September 28, 2010 11:21 AM
I am looking the treatment on DMD Because My two nephew are Harshit Aneja [9 Years] and Udit Aneja (4 Years) suffering from DMD. Kindly give me reply. Thanks
Replied on Wednesday, August 25, 2010 12:00 AM
I am looking the treatment on DMD Because My two nephew are Harshit Aneja [9 Years] and Udit Aneja (4 Years) suffering from DMD. Kindly give me reply. Thanks
Replied on Wednesday, August 25, 2010 12:00 AM

Guest
dear rishi go to site WWW.MUSCULARDYSTROPHY.GR and subscribe for NECTAR T it is more helpful more than 90%to slow down the disease and better quality of life
Replied on Saturday, August 28, 2010 12:00 AM
Dear Ms. Neha,

Can you plz suggest me with the treatment, what can be done. I badly need to know on the facts and process of treatment. Please mail me the details in my email id iawahab@gmail.com.
Thanks Abdul Wahab, Bangalore.
Replied on Friday, November 26, 2010 5:46 AM

piper.246
(Guest)
hi neha, my son aged around 12 years is suffering from dmd, he is on bed. can u please tell me the treatment or where i shall contact for the same. Thanx...
Replied on Saturday, February 12, 2011 12:25 AM
have son aging 9 years, he is suffering from DMD , In his early age he were walking but from last two years he stooped walking.Even he can't turn his body on bed. I mate so many doctors and then i came to know through newspapers that Dr.BS Rajput,Mumbai(orthopedic Surgeon) has performed stem cell transplantaion for DMD and being successful or may helpful to come out.I personally met with him he said that DMD can be cured after stem cell transplantation.Cost of treatment is bit expensive say around 10-11 lacs.if you are resourceful enough then one chance can be taken.I am taking too.(B.K.Sinha-9967584205)
Replied on Sunday, August 15, 2010 12:00 AM

Guest
Dear Mr Sinha, the stem cell transplantation claim by so called Dr BS Rajput is totally false and he is just aiming to cheat you out of your hard earned money which you might have to use a later point where stem cell therapy really is perfected. Please read http://www.actionduchenne.org/duchennepedia/article/142/treat-nmd-guide-to-stem-cell-t
Replied on Wednesday, August 18, 2010 12:00 AM
Dear anyone,
my grandson d-o-b 11.02.2006 diagnosed DMD early this year. Confronted with an undesirable unfortunate situation,we tried to consult known specialists to learn of the latest on the treatment of this dreaded disease.To the best of my knowledge no definite cure appears to have been evolved so far but in view of the concerted efforts by the researchers/specialists in Europe, USA,Australia some possible cure to this genetic disorder is only a matter of time.
Anyone faced with such a situation is advised to ensure:
1.Preventive measures against possible injuries to the child.
2.Feed diet low in fat but high in essential nutrients. 3.Supplement diet with vit C,E, calcium and selenium.
4.Maintain normal mobility avoiding strenuous physical exercise. 5.My own observation reveals that,Ayurvedic medicine from Swami Ram Dev's estt.Haridwar,lowers muscle demage by about 30%.
6.Extend all possible love and affection to the child without promoting in him the sense of protection/inferiority complex.
7.Last but not the least,encourage him to perform and develop a sense of realization, and await the nature take its own course while preparing for the inevitable.
Replied on Thursday, September 30, 2010 2:03 AM
verma ji
i read ur very valuable suggestions regarding prevention and remedial measures angaist DMD
my son having age of 10 yr is also suffering from DMD since 5/2/2008 [asper biopsy test] i know there is no treatment inspite of that i give him food suppliments of nutrilite brand lke daily, sibarien gingsing, bio-c, perselium-E, salmon omega-3, natural-B, cal-mag, proteen powder regularly
presentely he is energetic and and ready to fight angaist DMD
can u give me any suggestion pl.
Replied on Sunday, November 28, 2010 7:21 AM
dear all, My son is suffering from DMD from last year. He is now 4 years. Please help me how can I take care of my SON. I pray to GOD, please don's place a human in such a situation so that they feel like losers. please..................
Replied on Wednesday, October 27, 2010 5:38 AM

guest7865
(Guest)
its going to be okay just keep on having faith and believe that God can do all things even when it seems impossible.He sees favor in those that put Him first. so do not be discourage but have hope. God would never put you in a situation where yu cannot handle it.it only feels like yu cant handle it. Read psalm 91. when i feel stess out i read this scripture and it helps me big time.
Replied on Monday, February 7, 2011 8:22 PM
sir being a patient of MD I can understand your feelings....but lose heart believe in GOD....Have you read the latest research on this web...its quite hopeful that some treatment or alternate treatment will be available in near future...believe in GOD..............Sandeep
Replied on Friday, September 19, 2014 2:02 AM
 




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