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Genetic and Metabolic :
Muscular Dystrophy / Duchenne Muscular Dystrophy

Muscular dystrophy (MD) refers to a group of hereditary disorders which causes muscles to weaken and waste away. There is no cure for MC, but drug treatment for symptoms, therapy, and assistive technology can make a huge difference for a person with the condition.

Learn more about muscular dystrophy from doctors and other people and families dealing with the condition in this online support group for MD.

 

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Muscular Dystrophy / Duchenne Muscular Dystrophy

Muscular dystrophy is the collective term used to represent genetic disorders characterized by progressive weakening of muscles and wasting of muscle tissue. The term dys refers to abnormal and trophy represents growth. The term muscular dystrophy refers to inadequate/defective growth...Read More

Posted on : Tuesday, February 23, 2010 12:00 AM
Add reply       No of replies : 115

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Hi , I'm Dr Menat Allah . My son is suffering from DMD and now he is on a wheel chair . He is 13 years old . if the exon skipping therapy gives good results and is suitable for my son , please inform me and Iwould ask you is this therapy for all the mutations taking place in DMD or for specific types only . N.B : If there any new medication other than gene therapy , Please don't foreget me . please give me an E-mail to contact you .
Replied on Saturday, October 1, 2011 4:12 PM

srgordon
(Guest)
Hi, My brother has DMD and i think it would be good if he had someone with the same condition to talk to, if anyone wants to get in contact message me on: srgordon@hotmail.co.uk
Replied on Friday, October 14, 2011 8:49 AM
hii ....this is sandeep from India...i am also a patient of muscular disorder.
sir have you read its latest research? what do you think to what extent it is a hope for the patients......
Replied on Friday, September 19, 2014 1:55 AM
Hello All, My son is also suffering with DMD. Does anyone get a proper guidance to fight against this diseases. If someone seriously got something please share with everybody. It will be a very good help to all those parents and patients who suffers lot.
Replied on Wednesday, December 21, 2011 5:04 AM

india88
(Guest)
hello..my brother is suffering from DMD..can anyone please provide proper guidance regarding the treatment of this disease.
Replied on Monday, August 20, 2012 10:41 AM
Good day to you.
My younger sister Sahera Sultana [18] is suffering by Muscular dystrophy. Our consultant has advised us for -
(1) Genetic Testing for Dystrophy and
(2) Muscle Biopsy.

For your convenience i have attached consultation summary and some diagnose report i.e. CPK and EMG report.

We live in Bangladesh. So as an foreign patient we need your advise and help.
So Please let me know the procedure of appointment and The cost for the above two test

I am looking forward for your early reply. Thanks in advance.

Best Regards,
Jakir Hossain

"Only a life lived for others is a life worthwhile." -Albert Einstein
Replied on Sunday, August 26, 2012 7:36 AM
hello my name anuj mujhko bhi yai problam hai dear kya apki sister ko progress hui hai plz tell me..
Replied on Thursday, January 3, 2013 7:09 AM
 




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