Dear Zully I have the same problem, my Baby girl born with achondroplasia,if you know some new treatment,please let me know.

ps: if you want change some impressions please write me.

Hi Phil, sorry did not see the message until now. How old is your baby?. For this moment I did not contact yet the doctor in Spain, I will write to him today, to see whats new, I know that everything is running very good, but not as far as we wish.... but still a hope. My baby already walks, everything just like a normal kid, she walks at 13 months, and already says some words like mom, dad, etc. So For me is kind of normal, just her height.... we are happy know, much better, some time I am sad, but no much, most of the time, I am doing good, what about you?, do you have other kids?. Sorry if i have mistakes, I am from Mexico, and my English sometimes is not too good. :]

Hi Phil, sure I will let you know, I will contact the doctor in Spain, I know everything is runnig good, but not as far as we want... my baby is now 14 months and she walks perfect and run for all the house, everything good, and no complications, thand God!, Only her height. What about your baby, how old is her?

Hello Zully,

I would also be intersted in news about a medical treatment [there is research on it in Portland as well], we are from Europe and Emily is 3 and a half now with achondroplasia. She will undergo her first limb lengthening next February (but it would be much better with medical treatment!!)
she has got so much complications yet and she can`t walk alone by now , can`t speak like her friends.... it`not so easy for her, for us and for her sisters.
I´d wish any hope for her future.
Best wishes

Hi Emily, Sorry for my delay answer, did not see your message until today. I didnt know that the limb lengthening can be done at this age [3.5] I read about is beteween 7-12 years, is a new technique??, I will like to know and please I wish you that everything will run ok on the operation, We will pray for Emily, I know she will be just find, please let me know how is she doing. I will let you know everything about the treatment and all the researches, but still on investigation, nothing is aproved yet, And we need the treatment as fast as is possible... and all the research in the University Complutense of Madrid (Spain) is pay for the association of parents with childs with achondroplasia, is just private with funds...
Emily for all is very hard to face this kind of situations, but we have to try and never give up... If is hard for us, imagine for her... May I ask why she can not walk, it is for the limb lengthening, or what is happening with her?, ...Keep in touch and SMILE!!!!,

Hi Laureen, I know Dr Jesus Pintor in Spain he probably know everything you need, he is very friendly and english speaker. Look for him at Complutense University, he will answer, tell him that I give you his name, and tell him that I am working on the project we have, he will know. I bet he can answer you a lot of questions, fast and with a lot of humor, he is in charge of the research for the treatment for achondroplasia. Please go for it and help us to find a treatment for this kids

Zully, do you know how I could contact Dr Jesus Pintor?

Thanks very much for share this info.
We will pray for your son, I hope everything will go find with him. We are from Mexico

Dear Tanay,
You are kindly please requested to post the complete address of the doctors in both Lucknow and Delhi.

dr vipul shah
pediatric orthopedic and spine surgeon ,fi hospital burlington chauraha lucknow-226001 [email protected]
phone-9305542233
maharaja agrasen hospital ashok vihar new delhi
phone-09313635117[ankur]

hi thank you very much for this useful info. My nephew has been recently diagnosed with achondroplasia. this info would be very useful. would also like to know, if u know someone in mumbai who can help

Hi,

I am 12 yaers old and 7 months ago I got offerd limb lengthing and I turned it down. I am from England and would have been in a wheelchair for 6 months if I had had this done.

Thanks

Molls

Do you have any painful spells on your legs. My son 17 years of age is suffering with pain. He is Essex, England.

Hi.im from South Africa.my daughter who is now 5 years old was diagnosed with acondroplasia at the 1 year of age.goin to a normal school and coping very well.a FIGHTER TOO!gets some ear aches,but not so often as 3 years ago.can anyone help me with what sought of treatment they have tried that worked?can i get some feedback if stemcell treatment is effective?

Heyy i am doing a project on gentic disordiers and i picked achondroplasia, It has moved me in soo many ways. If you would please inboxx me If you would like to come to my school and talk about it i would very muchly apprishate it..