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Primary Amenorrhea

Primary amenorrhea is a condition when a girl has not started menstruating by the time she is 16, even though other signs of puberty, like breast development and the appearance of pubic hair, are normal. Besides hormonal abnormalities and other illnesses, low body weight or obesity, stress and rigorous exercise can cause primary amenorrhea.

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I am 31 yr old, and I have amenorrhea. I would like to chat with someone that has the same condition. My doctors do not consider this to be important and just want me to use birth control. They are not interested in finding out the cause nor to help with the symptoms. Another perspective in this regard would be greatly appreciated.

Posted on : Tuesday, October 13, 2009 6:55 PM
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Good luck Jenn!!!!!!
Replied on Friday, March 11, 2011 7:46 AM
Jenn - what's the word?! I've been waiting for your BFP update :D
Replied on Friday, March 11, 2011 3:58 PM
UH i dont know yet! I called them and the front desk lady said they got my results but they are just waiting for the dr to review them. Im dying here!
Replied on Friday, March 11, 2011 4:38 PM
Ugghh what a rollercoaster of emotions eh? Praying for the best for you!!
Replied on Friday, March 11, 2011 5:45 PM
Omg, omg, omg!!!!! I'm pregnant!!! Thank you girls for the prayers and support. This is unreal. If i can, you girls can too :)
Replied on Friday, March 11, 2011 7:43 PM
Awwwwwwwwwww Jenn!!!!!!! YAY!!!!!! I'm soooo happy for you...CONGRATULATIONS!! What was your beta and progesterone numbers? That just made my weekend :D
Replied on Friday, March 11, 2011 9:05 PM
: D
Replied on Friday, March 11, 2011 9:39 PM
Thanks girls!!! Its unreal. My hcg level was 165. Thats all they told me. You girls are next :) i can't wait for my ultra sound. I dont have a date yet.
Replied on Saturday, March 12, 2011 10:06 AM
Congratulations Jenn! please try and take things easy for the next couple months. I am so happy for you God bless.
Replied on Saturday, March 12, 2011 12:32 PM
Jenn - how are you feeling? Did you have to go for a follow up blood result? Has your ultrasound been scheduled yet?

AFM - I'm 10dpo and have absolutly no symptoms at all. No cramping, twinging, sore boobs - absolutely nothing. So I've lost hope on this cycle already. We will be doing IVF next round. I'm thinking of going on the bcp for 1 cycle and then move on to IVF on the following cycle. I always have cysts on day 3 so taking one cycle off will bring my hormones / cysts back to normal. You went on the bcp for a month as well right?
Replied on Tuesday, March 15, 2011 8:27 AM
Andrea - what's going on with you? Any updates on your cycle?
Replied on Tuesday, March 15, 2011 8:28 AM
I went back in Sat and Mon and things were looking some what better until today. I went for bloodwork today and my estrogen crashed again. So tonight I'm taking double the dose of Puregon and will be back tomorrow for blood work and ultrasound to see if I lost the one follicle I had at around 15. On Monday my lining was good and my estrogen too so this is very frustrating.

Don't worry too much about not having any signs. Women form the OFC forum experienced the same thing and got pregnant while others had signs and didn't become pregnant on that try. Keep some hope!!!
Replied on Tuesday, March 15, 2011 4:04 PM
Man! What a rollercoaster eh? Really hoping you get good follies, lining and estrogen tomorrow. Does one click of puregon mean 75IU? Or actually just one click b/c I think that's much less than 75. Best of luck!!
Replied on Tuesday, March 15, 2011 4:19 PM
ya this cycle is not fun :( I'm on 75 IU of Repronex and have been on 25 of Puregon but bumped it up to 50 IU tonight. I'll let you know how it goes tomorrow. I have no bleeding so that could be a good sign.

That's a good sign that Jenn didn't have any signs :) AKD I really hope you have good news!!!

Jenn that's a good number yay!!!
Replied on Tuesday, March 15, 2011 9:29 PM
I had another blood test and my number was 165 and yesterday it was 653! My first ultrasound is next wed, the 23. AKD i dont have symptoms either so u shouldnt worry too much. Cant wait for ur results :)
Replied on Tuesday, March 15, 2011 6:46 PM
Andrea - you are on such a low dose for the cycle day you are on. I went from 75 to 150 to 225 last cycle. Your RE for some reason takes things painstakingly slow. Hope you have great results today. Please keep us updated!

Jenn - woohoo!! Sounds like a strong pregnancy. The reason I think I'm out is b/c I didn't even get the cramps that you said you got in the uterine area. But I am still hopeful because anything can really happen. I had 4 follies and 82 million washed sperm in total. If no good news tomorrow then moving on to IVF.
Replied on Wednesday, March 16, 2011 8:45 AM
This is great news Jenn. I am so so so so so happy for you. It sounds like a strong pregnancy. Good luck with your pregnancy and keep us updated on everything.

AKD: I have my fingers crossed for you. Keeping you in my prayers.

Andrea: Any news?
Replied on Wednesday, March 16, 2011 9:29 AM
This is great news Jenn. I am so so so so so happy for you. It sounds like a strong pregnancy. Good luck with your pregnancy and keep us updated on everything.

AKD: I have my fingers crossed for you. Keeping you in my prayers.

Andrea: Any news?

As for me: ive now transfered to AKD's doctor. I really like him. He's starting me on HMG 225 iu's. My periods should be starting in a week so lets see how this goes.
Replied on Wednesday, March 16, 2011 9:30 AM
So my lining is back up and I have one follicle almost ready to go and a second getting close. Should be able to trigger tomorrow. The increase of Puregon helped. Things seemed to have turned around yippee! Such a strange cycle considering it bottomed out half way through.

Yep they take things sooooooo slowly. They are so scared for multiples at this clinic. If this doesn't work this round I'm looking at IVF too. There's talk of it being covered by the province possibly in the future so I'll have to look more into the odds of that to decide if I should wait or not.

AKD will be checking tomorrow for updates! FX!!!!!!!! Hugs!!!!

Hopeful I'm glad you transferred - he seems like a good RE - good luck to you!
Replied on Wednesday, March 16, 2011 10:35 AM
Andrea - yay! for good results today. Hopefully tomorrow's results are even better and you trigger and get a BFP :D. Let me know what your lining, estrogen and follie sizes are on the day of the trigger.

hopeful - good to hear from you. Are you back from AUS? Hopefully the new doc proves to be lucky for you :)
Replied on Wednesday, March 16, 2011 12:23 PM
congrats jenn!! i feel so happy for u...
Replied on Thursday, March 24, 2011 11:35 AM
congrats jenn!! i feel so happy for u...
Replied on Thursday, March 24, 2011 11:35 AM
Looks like Sat will be the day to trigger. AKD I'll post the info for you on the weekend. Today I have two follicles at 13 and 17, my lining was about the same and my estrogen was at 912. Seems a bit crazy considering my hormones crashed twice during this cycle - the doses they have me on are so small which is why. So I'm sticking to the 75 Repronex and 50 Puregon - my body seems to be pretty sensitive to this stuff but looks like the increase was what I needed.

Have you in my thoughts and prayers today AKD! FX!
Replied on Thursday, March 17, 2011 11:14 AM
Andrea - things are finally shaping up!! Good luck :)

So as suspected, it was a BFN. I don't get it - I had 4 eggs, 82 million post wash sperm and a lining at 8.3. This was IUI # 5. We've done multiple strong cycles and I'm starting to get worried. Jenn's story give me hope though :) We're moving on to IVF. It will cost us $10,000 - really really hoping it works.
Replied on Thursday, March 17, 2011 1:44 PM
I'm so sorry AKD :( That is exactly how i felt especially since my sister got preg her first iui. I bet you ivf will work for you too!
Replied on Thursday, March 17, 2011 2:41 PM
Jenn - you said that you took a month "off" and went on the bcp right? I am thinking of doing the same b/c I always have cysts at the end of each cycle that mess up my estrogen level in the beginning. Did you ever have cysts on your day 3 scans? They eventually go away but I'm worried they mess up the hormones. I know my RE's going to say that I can start now if I want but I want to know if that's safe. I will be put on generic HMG for my IVF (no menopur or follistim, I will definitely bring these up when I see my RE on the 26th). What was your estrogen on the day of trigger? I know that with IVF, there's so many follies which drastically increase the estrogen level. I'm sure I'll be asking you tonnes of IVF questions (sorry in advance lol). I'm hopeful yet afraid at the same time. A lot is riding on this IVF. We're already in a financial hole so really hoping it works for us. Did you start your meds on day 3 or day 5 of the cycle?
Replied on Thursday, March 17, 2011 3:01 PM
Don't even worry about asking me tons of question. I like doing what i can to help, but I might not remember everything.
I did have cycts after every cycle. Thats why they put me on the bcp to let my overies relax. You might wanna suggest that endometrim biopsy to your RE. Its the that gets rid of any plasma cells. I dont remember my estrogen on my trigger day. I know how you feel about financial hole, i had no idea what we were going to do if ivf dodnt work cause we were just about out of money! I started my meds day 4. I bet you ivf will work. The % is way better then iui. You actually have a better chance of getting preg then not getting preg! Good luck! Ivf is exciting.
Replied on Thursday, March 17, 2011 3:37 PM
Jenn - In the month that you were "off", did you take anything other than the bcp? I regularly take Vit D, Vit E and prenatals. I think I will stay on these during the next month. Any other suggestions? I will ask my RE about the hysteroscopy. Does it matter what cycle day it is done on? If it is scheduled, what day was yours done on? Also, you said that you did IVF with ICSI right? So there were 2 eggs where the sperm was directly inserted? This is ICSI right? Which embryos were implanted, the ones with ICSI or the ones where the sperm swam and found the eggs? On your IUI cycles, was your lining as thick as it was on the IVF cycle? My lining is averaging to about 8 with IUI's, I have a feeling it will get even thicker with the high doses of IVF. Did that happen in your case?

Trust me - the questions will stop by the next day. I'm just excited about IVF so I'm flooding you with questions lol - but soon I'll run out hehe.
Replied on Thursday, March 17, 2011 4:28 PM
AKD I'm sorry it was BFN :( I wonder if there are any good stats out there for women with our problem. I'd like to know the success rate and amount of tries for BMS and IUI vs IVF. IVF just has better odds, I know it's expensive, but if we're gonna spend all this time and money anyway I feel like why not go right to IVF?
Replied on Thursday, March 17, 2011 4:34 PM
AKD ~ i didnt take anything other than the bcp and prenate. I did that biopsy around the third week that i was on the bcp, but i dont think that matters. Yes we did ICSI with 2 eggs and the other 2 were in the dish with sperm. They implanted 1 of each. Sorry i dont remember my lining.

Andrea i wish they had a better idea of statistic rate for our condition. I prob would have gone straight to ivf instead of 6 iuis, but it was hard to know since my sister with PA got preg on their first iui!
Replied on Friday, March 18, 2011 6:37 PM
Andrea - have you triggered yet? How did everything go?

Jenn - thanks so much for replying again. I am seeing my RE on Wednesday and I'll ask him about ICSI as well. He mentioned the biopsy himself without me saying anything so that's good. It will be on day 21 of the bcp. I got my period on Saturday - when should I be starting my bcp? When did you start it? I'll get the prescription from him on Wed and start it that day. Is there anything else I should be asking him at this point? How are you feeling? Can't wait for your ultrasound result on Wednesday :)
Replied on Monday, March 21, 2011 8:26 AM
AKD ~ I'm glad he said something about it. I went on the pill 4 days after i started my period. so that's pretty close to my sch, and i had my biopsy 21 days too! I got my results about 4 days later and went on antibiotics. I was on them for about 11 days and went back for a follow up biopsy. Other then that, i can't thing of anything else you should ask. I hope your biopsy is good so you can get going on things sooner then I did.
I am feeling fine. Still no symptoms. I am starting to get a rash at my progesterone injection site. I'm going to call my RE to make sure this is okay. I can't wait for my US either. I'll let you know how it goes.
Replied on Monday, March 21, 2011 12:35 PM
Jenn - why did you guys decide on ICSI? Did the RE recommend it? Does your husband have low count or motility / morphology issues? I was researching about ICSI and it's usually done when there's male factor issues. Do you remember what your hubby's count size was? You got Grade A embryos with and without ICSI right? I am wondering if our RE will let us do ICSI.
Replied on Monday, March 21, 2011 4:15 PM
Our RE recommended ICSI for us. Prob just so we had something in case the other way didn't work. It's funny cause they told my husband that his sperm was the best they have seen all week and this is a big reproductive center. So i don';t think my husband was the issue. I don't remember his count. She did call our embryo a grade A but she never said whether it was the ICSI or not. Maybe you could ask if you can do half your embryos ICSI and half in the Petri Dish.
Replied on Monday, March 21, 2011 4:27 PM
I did the trigger shot Sat night. One follicle was 17 and one was 12, my lining was around 9 and I don't know if my estrogen went up or down since two days before when it was at 912. So will be on Endometrin starting Wed - had really bad cramps this morning. We'll see how things go this try.
Replied on Monday, March 21, 2011 8:50 PM
Andrea, I think ive asked you before, but what are u going, iui?
Replied on Monday, March 21, 2011 9:35 PM
Jenn - good luck with the ultrasound today. I hope you hear a strong / healthy heartbeat(s). My appt with the RE is actually on Monday - I thought it was today. I started the bcp yesterday (Min-Ovral). Will have my biopsy on April 11th. Looks like IVF will be around end of April. Hoping this year's Mother's day is a lucky one for me :) because my result with close to that date if all goes well.

Andrea - you're in my thoughts. Hope this is your BFP cycle.

Hopeful - will you be getting A/F soon?
Replied on Wednesday, March 23, 2011 9:49 AM
Well, my RE had all good things to day. I have a nice single sac (one baby!) and it is a perfect size, my levels are good, my ovaries are normal! My baby was too small still ho hear the heart beat. I have another u/s before i graduate back to my obgyn!
Akd~im really excited for u to be doing ivf! You could be preg in a month!!! Im happy u are doin the biopsy also.
Andrea~what are those cramps doing? any other symptoms???
Replied on Wednesday, March 23, 2011 4:58 PM
Jenn - yay for a healthy and "perfect" looking sac. I bet by the next ultrasound you will hear the hearbeat. When is the next ultrasound scheduled? Also a little relieving to hear that it is one baby. I know a couple of women who have PA and were carrying twins, both of them delivered very prematurely due to the small uterus (27 weeksish). So if you have one baby you are most likely going to go full term :D
Replied on Thursday, March 24, 2011 8:56 AM
yay Jenn! this is very good news :) That makes me so happy to hear!!

So I took my trigger Sat and they told me to start endometrin on Wed which I did. Woke up last night bleeding a lot. The RE on call at the clinic reviewed my entire chart. He says from what he sees I haven't had one follicle from these attempts that was good quality or I would have made it longer and wouldn't have bleeding throughout the cycle. He said to get pregnant we're looking at needing 4-6 tries with follicles of good quality. So I've got my follow up booked in April to talk about taking progesterone injections instead of endometrin but I want to consider IVF if they can tell me my eggs will be ok or just stop and adopt.
Replied on Thursday, March 24, 2011 10:49 AM
Oh no Andrea! I'm so sorry to hear about the bleeding. I have a feeling that your RE puts you on injections for way too long. Your injections are for like 25 - 27 days and that's not normal. I know she's worried about multiples but injecting for 25 days is not good - you will not get good eggs if you're incubating for that long - I could be wrong but that's what I'm thinking. You can definitely move on to IVF. You get a good lining, you HAVE eggs and you respond to medication. If your RE puts you on the correct protocol, I know this can happen for you. Don't think about adoption just. There's too much right going on to think about giving up just yet.
Replied on Thursday, March 24, 2011 3:26 PM
hi AKD - i agree it seems too long but the clinic seems to be ok with it - I guess it's their way of doing things but I'm not willing to keep trying this way at all :( it's either IVF or adoption
Replied on Thursday, March 24, 2011 6:57 PM
Jenn - I have a quick question. When did get your period when you were on the BCP? I'm asking b/c there's a business conference I want to attend from April 14 - April 17th. Those will be CD24 - 27. When I was on the bcp before, I usually got my period around CD 26 - in which case I would be safe. I'll await your response...thanks!
Replied on Friday, March 25, 2011 8:47 AM
Yaaay Jenn for your healthy looking sac. I am so happy for you.

Andrea: Im so sorry to hear about your bleeding. I agree with AKD, i think your RE is going too slow and extending it too long with your treatment. Have you asked him why he wouldn't put you on a more aggressive cycle? What is his reasoning? Like for me, i'll be starting at 225 iu's of HMG.

AKD: Hey! I'm finally home now and ready to go full swing with my treatments. Aunt Flo should be visiting on Wednesday (my birthday). Oh, remember I was telling you about my friend who also had PA and was pregnant. Well, she delivered 3 weeks early. She said her water broke and she didn't even know it. She did not have a regular water break like other women. She went to the washroom, peed and then after a while had horrible back pains. When she decided to go to the hospital because she could not handle them, the nurse said her water had broken and she was in labor. Her labor was 12 hours long though. But she delivered a perfectly healthy baby girl.

Baby dust to us!!
Replied on Saturday, March 26, 2011 7:20 AM
AKD ~ Sorry it took me so long to write back. I was on the pill for a long time. So it was about 42 days til i had my period.
Replied on Monday, March 28, 2011 12:20 PM
Jenn - What pill were you on? Mine only cycles for 21 days. Is there a chance I may not get a period within the normal bcp times and would need the 42 days for pills? Or did you have to extend your bcp b/c of your plasma cell results? In that case, did you start another pack right after the 21 days which resulted in the 42 days for the period?
Replied on Monday, March 28, 2011 2:34 PM
Adk~ yes, the reason that i was on it for so long was cause i had those plasma cells. I just went from one pack to the next but i never took the last row of pills, the ones that give me a period. I dont remember the name of the pill.
Replied on Monday, March 28, 2011 9:15 PM
Jenn - did you do a day 3 or a day 5 transfer?

How are you feeling? When is your ultrasound for the hearbeat?
Replied on Tuesday, March 29, 2011 11:49 AM
Adk- i did a 5 day transfer. Ive been feeling pretty normal other then felling hungry but nothing sounds good. I kinda felt a lil nausous earlier at work so i had some pretzels and it went away. But it wasnt bad. I dont have a u/s yet, but i think i will call my re to make one last one before i graduate back to my obgyn.
Replied on Tuesday, March 29, 2011 3:03 PM
Hi girls!
My name is Maria and I'm 23. I come from Sweden and therefore my english is not really perfect, hope you will get everything. :) I've been following your discussion for almost one year now and just decided to write myself. I have never posted anything on a forum before so it feels a little akward. When I've been reading I got surprised by how supporting and friendly everybody here seem to be. Though I didn't participate in the discussion I still felt a support from you guys. It's not many people out there with the same story as we have so I'm happy to see there's a place for us to talk, share stories and support each other..
I was diagnosed with PA when I was 17 and was then put on birthcontrol pills until little bit more than one year ago when I decided to stop them. I wanted to see how my body reacted and to see if the body had "recovered" during these years. But no, the period didn't come and now me and my husband are longing for a child.
My FSH level is as high as 48 and the LH is also way too high. The estradiol is super low so it doesn't seem very promising. I started with acupunture 3 months ago and since then I've been taking Chinese herbs as well. Will do a new blood test this week to see if the FSH went down. If not I will move on to IUI treatment. Anyone here with high FSH/LH and low estrogen levels?

I'm so happy to read about the happy news Jenn, congratulations! All the best to you!
Replied on Tuesday, March 29, 2011 4:25 PM
Maria - Great to hear from you and welcome to the board :) ... It's true that there are not a lot of women out there with our condition. It is extremely rare and occurs in less than 0.1% of the population. Sucks that we are a part of this less than 0.1%. I don't remember what my blood results were when I started my investigative cycles at the fertility clinic. After my IUI's, my estrogen is always around 90, low lH (less than 1) and low FSH (less than 1). I believe that with our condition, if we are not undergoing any treatment (ie. bcp), our LH and FSH would be high. You're really young and good to hear that you're proactive at such a young age. I'm 26. I took the pill since I was 15, I stopped it for about 3 months when I was about 21 b/c the doc wanted to see if my body had changed - but nothing. I didn't get any period if I wasn't on the pill. I have been TTC for 6 months now, I've done 5 IUI cycles and will be moving on to IVF. Have you had HSG or scan of your ovaries done to see if there are any follicles? So far I know 8 women online who have PA and 5 of them have had kids or are pregnant :) ... we need to keep our faith and hope for the best - it will happen for us too! If you want to take things a little slower, the herbs and acu are a great option - but my RE told me from the beginning there's 0% chance I'll conceive without fertility treatments so I started right away and am still waiting but hopeful :)

Best of luck and keep us updated!

Andrea - how are you doing? It must have been to hard that the cycle ended as a bust. Really hoping you will get some good answers and move to your BFP protocol soon.

Hopeful - so great to hear from you. Glad that you're about to start cycling again. I go in for my biopsy on the 11th and have my IVF consuation on the 15th. I will probably get my period around the 15th or so. If the biopsy results are fine then I start IVF that cycle. Let me know if you need any help figuring out things at the clinic. The Brampton clinic is great for us b/c it's close to home, but I'll have to be at Mississauga the entire clinic b/c that's where they do IVF. Good luck and keep us updated :)

Jenn - thanks for getting back to me on my million questions. I will asking for half ICSI and also a day 5 transfer, lets see what the RE says to that. What medications are you taking since you became pregnant? Are your progesterone shots daily still or do you take oral pills? I wonder if I'll have to take the progesterone oil shots everyday or just the pills. Thinking healthy heartbeat and pregnancy thoughts for you :)
Replied on Tuesday, March 29, 2011 8:25 PM
hi every one.i was dignosd PA at the age of 16.I took pc pilla fo about 2 years ane stopped them.i am now 24.about 7 months ago i posted on this forum.Many of you encouraged me.Then i started again pc pills.i am not married. i am suffering from severe stress now a days about my future and i think due to this reason i have noticed now that my menstrual flow is very low this month.colud anyone suggest me whats the reason of this?what should i do now.Should i change my bc pills or continue the same.sometimes i get so frustrated that i think to stop pils.i kow the society where i live no one would be ready to marry me
Replied on Wednesday, March 30, 2011 12:33 AM
Sanaa - Good to hear from you. I know how you feel. When I didn't have my bf (now husband), I was really afraid of the future and who would want to marry me. But when the time is right, the right person will come along. The good thing is that you get your period with the pill - with PA 40% of women don't even get that. Many PA women, don't even have ovaries or a uterus - so we should be thankful that there's hope for us. But I know how you feel and it sucks :( ... Stay positive and stay strong. If you ever have any questions about PA - please don't hesitate to ask :)
Replied on Wednesday, March 30, 2011 8:48 PM
Congrats Andrea on your BFP!! This is such great news. What a surprise!! What a good way to start off the week. I am so so SO happy for you.

Jenn: Yaayy for the strong heartbeat. Are you tranfering to a ob/gyn now?

AKD: Hang in there sweetheart! Its just you and me now! And if Jenn and Andrea can get pregnant than so can we. Money will grow back. Just have faith and evrything will work out.

AFM: I am on CD 13. I have 4 very strong follicles. As of today (injection day 12) my follies are measuring at 18, 17, 16 and 14. My uterus lining is at 9.1. LH still low. My estrogen level jumped 3000 points from CD 8 to CD11 and i'm sure it'll be higher by the time i get my b/w results later on today. Doc said to come in again for monitoring tomorrow and then I should be triggering!!! My doc also advices theres a BIG chance for multiples. Honestly, at this point i'd be happy with anything. This is so exciting as I have never made it this far before. My husband and I celebrate everytime my follies grow. LOL.
Replied on Wednesday, April 13, 2011 10:04 AM
HI AKD - sorry I've been missing in action - I started a new job last week so I've been super busy. I'll see what my RE says in a couple of weeks. I'm totally against continuing with the same protocol I've been on so I'll see what they say. I hope all goes well with your biopsy and am crossing my fingers for you!

Jenn I'm super happy for you. Keep us updated!

Welcome Mariaaa :) I was diagnosed at age 16 but not put on the bcp (I'm from a small town and blame it on their lack or experience with this). If I'm not on bcp then my FSH and LH levels are high. At one point so high they thought I had partial or full ovarian failure bit they weren't correct about that since I respond to injections. This site is really supportive and I know it makes me feel less alone with this problem that is so uncommon.

Sanna some bcp pills are low dose - I know my period was very light almost like spotting for other women. I know it's hard not to stress and believe me I've been there and know how bad it can be but don't stop taking the pill - you r body needs the hormones and don't give up hope because there is hope and treatments do work. Something that took me until age 32 to learn! I wish I knew that earlier!

Replied on Friday, April 1, 2011 5:29 PM
Oh also I agree with what AKD said about thinking you wont find anyone. I dated people for a while who didn't want kids because I didn't want to go through the stress iof having this become a problem. But when I got over that silliness I found that you are then open to meeting someone who is right and who is willing to try and find a way to have a child or even be open to adopting if need be There are many options open to you so don't think like it should stop you from finding happiness.
Replied on Friday, April 1, 2011 5:32 PM
Hello ladies. Sorry I have been MIA. Just been extremely busy with work. So good to see new faces on here. Don't worry Sanaa and Maria, you guys have reached the right place. We are all here to help eachother out. It is very unfotunate we have this condition but what can you do?!!
Sanaa: Your name sounds indian/pakistani. I'm from pakistan and when you say "the society where i live no one would be ready to marry me" I know exactly what you mean. Its unfortunate our society is like that BUT trust me when I say the new generation of this society don't think like that. Before I met my husband I too used to think exactly like you. I used to cry/stress to the max but when I finally met my husband and told him about PA, his first reaction was "So? There's always adoption". I honestly never thought I would get such a laid back reaction like that. I too was scared to meet people because i knew nobody would marry me. Even my in laws are very supportive. So don't worry Sanaa. When the right guy comes around, he'll take all your fears away. And like AKD said, we do have a chance because we do have ovaries and uterus. It will just take sometime to be able to have a child. We just have to be patient.
Maria: I was diagnosed with PA at the age of 14 but at that point my doctors said I did not and will not grow ovaries/uterus. So I lived with that till the age of 21 till my mom pushed me into seeing a gyne just to see if things changed. And luckily they did see small ovaries and a normal uterus. She then prescribed me birth control. Now that i am married we are looking into having a baby. My FSH/LH e2 are all very low. But nothing some very expensive injections can't fix ;) Keep up posted.

Andrea: When do you see your RE again to discuss different protocol? Can you maybe change to another RE who might have more experience with PA?

AFM: I'm on my day 5. I only have one follicle this cycle. Started 225 iu's of HMG on cd2. Going in for my follow up tomorrow morning. Hoping more follicles pop up on the u/s. I'm thinking of doing 2 cycles of timed. If that doesn't work then doing 2 cycles of IUI and if still no luck then moving onto IVF.

Jenn: how have you been feeling? Any morning sickness yet? When is your next u/s?
Replied on Monday, April 4, 2011 11:26 AM
hopeful - good to hear from you. You have a normal sized uterus - that's awesome!!! Myself (and all other women that I know with PA) have an infantile / underdeveloped uterus. That's great news :) ... best of luck on your u/s tomorrow - keep us updated.
Replied on Monday, April 4, 2011 8:55 PM
Went in for my follow up today. Another follie has popped up on the ultrasound scan. Now I have one on each ovary (*Happy dance). But my thyroid is acting up so now I am on lewthyroxine to bring it back to normal. Also, my nurse called later saying that my bloodwork showed no increase in my estrogen so now my RE is up-ing my HMG dosage to 300 IU's!!!!
Replied on Tuesday, April 5, 2011 6:06 PM
Akd84:Thanks alot for your support
andrea14:yesi know some bcp are of low dose.actually the pills i am taking are hormone plls these are not bcp.
andrea14:thanks for your support tooo
hopeful2bpreg:ya i am from pakistan.gud to hear that you are from pakistan too.You know what people think in our society.Even my family dont support me.they think that i should not get married but i cant spent my whoe life alone.....i dont know what to say more plz all ladies pray for me.sometime i think to ran away from here but where????? i dont know
Replied on Wednesday, April 6, 2011 2:24 AM
hi ladies - so some interesting news to share. My breast have been killing me so on Sunday I was grocery shopping, bought a pregnancy test and took it in the store washroom. It was positive so today I took another and it was positive. Im shocked considering how my last round of injections went and all the bleeding I had 4 days after the trigger shot. Anyway will see my RE on Friday and have asked to get a blood test done. Will keep you posted.
Replied on Monday, April 11, 2011 7:41 PM
WHAT Andrea!!! I hope it's true! I can't wait to hear what ur RE says. if you really are preg, i hope they give u meds to help support the pregnancy. This could be super exciting :)

Adk how was your app?

Hopeful any updates?

I've been doing good. I am 8 weeks pregnant. I don't have much morning sickness. I have an u/s tommorrow. I'm hoping i will hear the heartbeat. My last u/s i saw it but couldnt hear it.

Sanna & Maria welcome to this site. So glad you found us.
Replied on Monday, April 11, 2011 8:02 PM
OMG. This is such great news Andrea. How can you wait that long till friday? I am getting impatient here. Keeping my fingers crossed for you. I hope and pray its a BFP!!!!

I have never been this far in my cycles before. I now have 5 follicles. All growing well. MY TSH was off so i'm on meds for that. All seems fine now though. I'm on CD12 right now. | have one follie at 14mm, one at 13mm and the rest are at 10mm. I see my RE tomorrow to discuss IUI. I had initially planned on doing Timed but because everything seems to be going so well i'm considering adding IUI to my timed. If all goes well I should be triggering this weekend. :)

Jenn: Good luck on your u/s today. Hope you can finally hear the heartbeat!
Replied on Tuesday, April 12, 2011 7:45 AM
OMG Andrea!!!!!!!!!!!!!! I'm soooo excited for you. Really hoping it's a strong pregnancy :) You should try to go in asap to get your results in case you need additional support ie. progesterone. I wouldn't have been able to wait until Friday. What a nice surprise!!!

Jenn - yay for 8 weeks. 4 more weeks and you're out of the first trimester!!! Hope you hear a strong / healthy heartbeat today :)

Hopeful - you're responding soo well. Hoping this is the BFP for you :). Only 2 of us left now, we gotta make it happen!!!
Replied on Tuesday, April 12, 2011 8:37 AM
ok so was able to get in today for a blood test and its positive! I'm pregnant. They said the levels looked strong and I'm in on Friday for an ultrasound and to see my RE. CRAZY!

Jenn - how was the ultrasound?

AKD any updates?

Hopeful things sound good and I'm wishing you lots of luck!
Replied on Tuesday, April 12, 2011 4:20 PM
Andrea that is awesome!!!!! I bet you were sooo excited to hear that. So glad you didnt have to wait til fri. Congrats :)

Adk and hopeful, you girls are next for sure. 2011 is a baby year for us girls :)

I had my u/s today and got to see the heartbeat but still to early to hear. But the heartbeat was strong! My due date is november 17.
Replied on Tuesday, April 12, 2011 7:31 PM
Andrea - congratulations!!!! You must be over the moon. That's wonderful news. What was your beta number? Best of luck on the ultrasound on Friday - hope you see a beautiful sac.

AFM - I had my biopsy on Monday. I will find out the results and have my IVF consultation with the doctor on Friday. I'm excited but extremely nervous - what if this doesn't work for me? We'll be putting almost $10K out of our pocket. I will try to be more positive b/c that can of course only help the outcome :)

Jenn - thinking of you :) Great that you saw another strong heartbeat. Just a matter of time before you hear it now.
Replied on Wednesday, April 13, 2011 8:30 AM
Congrats Andrea on your BFP!! This is such great news. What a surprise!! What a good way to start off the week. I am so so SO happy for you.

Jenn: Yaayy for the strong heartbeat. Are you tranfering to a ob/gyn now?

AKD: Hang in there sweetheart! Its just you and me now! And if Jenn and Andrea can get pregnant than so can we. Money will grow back. Just have faith and evrything will work out.

AFM: I am on CD 13. I have 4 very strong follicles. As of today (injection day 12) my follies are measuring at 18, 17, 16 and 14. My uterus lining is at 9.1. LH still low. My estrogen level jumped 3000 points from CD 8 to CD11 and i'm sure it'll be higher by the time i get my b/w results later on today. Doc said to come in again for monitoring tomorrow and then I should be triggering!!! My doc also advices theres a BIG chance for multiples. Honestly, at this point i'd be happy with anything. This is so exciting as I have never made it this far before. My husband and I celebrate everytime my follies grow. LOL.
Replied on Wednesday, April 13, 2011 10:15 AM
fyi - this forum has moved on to page 16 so please click on the next page...
Replied on Friday, April 15, 2011 3:57 PM
hi mariaa, i do have similar probs as u do.. i have high fsh. recently i went to see a RE and was diagnosied as ovarian failure. he kinda tell me its not possible for me to get pregnant unless i do eggs donation.. :( do let me know if u have other alternatives..
Replied on Saturday, April 16, 2011 12:05 PM

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